This is about my life with my 5 yr old daughter who has mild to moderate spastic quadriplegic cerebral palsy, Schizencephaly ,Partial Seizures, Allergies, Asthma. And the challenges we are faced with on a daily basis along with the new challenges that we will be faced with as our family expands to include another baby girl.
Tuesday, March 17, 2009
Possible fracture
So Audrianna had an xray done at the er yesterday. It shows she has a possible fracture on her fifth toe on her left foot. And I was completly wrong its her left foot thats the highertoned one. And its also the one she walks on her toes with, sometimes the side of her foot, or sometimes she drags it so they said because shes alwas twisting it she could have fractured her toe that way. Ugh it sucks so now we have to buddy tape it for a week or so til she gets another xray. We are also following up with her pediatrician today. We have a team meeting with her school to go over her progress and im willing to bet talk about her feeding tube thats at 10am today, Then at 1:15pm is our followup with her pediatrician he was in guatamala for awhile I need to see if he filled out the ucp intake form the part he needed to fill out then i need to talk to him about how her dr in boston feels she should be tested for mitochondrial disease. Then when I get home its make dinner for audrianna and get her ready for bed because she has to be up with us to be at the hospital for 730am for the ph probe at 8am. I can't wait til all of this is done so we can start to relax. yeah like that ever happens
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