This is about my life with my 5 yr old daughter who has mild to moderate spastic quadriplegic cerebral palsy, Schizencephaly ,Partial Seizures, Allergies, Asthma. And the challenges we are faced with on a daily basis along with the new challenges that we will be faced with as our family expands to include another baby girl.
Monday, February 2, 2009
We are home
Audrianna and I left the hospital yesterday on Saturday they put an NG Tube in and she had it and was getting fed through the ng tube the rest of the day saturday and all day sunday til we were discharged at 4pm She had lost weight and was 26lbs thats and with that and the fact she barely eats they decided to do the ng tube and see hwo it went. Well Audrianna left the hospital weighing almost 29lbs. The next course of action will probably be a gtube we will find out more when we see her gi dr on the 11th. I think it depends on if she can keep this weight on or not. Thank you for everyones prayers it's nice to see people truly care. Audrianna is still very tired and has a small fever and a runny nose she started with the fever saturday night at the hospital. They were afraid to keep her any longer then necessary because they didn't want her to catch rsv which is what is going around at the hospital right now. Of course im a lil nervous cause she has the runny nose now to. But we follow up with her neurologist tommorow and her ped soon so if anythings wrong they will beable to catch it in time.
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4 comments:
glad to hear you're home! Hope this is just a case of the sniffles!
Thanks I ended up cancelling her neurology appointment today her dad never showed and my car doesn not hande snow well at all.
Sorry to hear that..i heard you guys got more than we did...only an inch or two here...I have to talk to Dr. Jackson about Sammy...not sure if he's having small seizure stuff going on again..he's having some signs of it and is waking at night a lot crying for no reason.
I'm not even sure how much snow we got exactly cause we stayed in lol. We saw her pediatrician yesterday he's worried cause Audriannas been really sleepy still all she does is sleep. Hes getting a hold of Audriannas neurologist dr rosen. Because He thinks Audrianna migt be on to many meds. Dr Jackson is the one who increased meds and put her aon another med ect. i'm kinda freaking cause Audrianna might end up back at the hospital.
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