So Audrianna had 3 drs appointments today we have 3 more tommorow but I need to reschedule one since two are at the same time. anywas today Audrianna had her first visit with the pulmonologist. Audrianna has a cold so possibly or its just her allergies but her ped has her on bactrium an antibiotic just in case. so Im kinda glad audrianna saw the pulmonogist so he can hear her breathing and stuff. Since everytime she has a cold she needs the nebulizer machine. well he listened to her lungs then had a nurse come in and give audrianna 4 puffs of this stuff called alvesco she got it through a spacer which we have one at home. And then he came in a lil bit later and said she sounded so much better so now Audrianna will be getting 4-5 puffs of alvesco in the am before she heads off for school since by the end of the day her allergies really kick her butt. Alvesco is an inhailant but its a vitamin for audriannas lungs and then we follow up in six weeks we also still use the nebulizer when needed he want to try and make it so audrianna doesnt need it 6 times a year. Then we were off to the hematologist her hematologist wasnt in so we saw a different lady audrianna had a finger stick done for her blood count and she was perfect for it no fighting or crying. Then the dr came in her platlette count is still pretty good 274,000 i believe is what she said her white cells are fine.I want to say her red cells are larger then normal so shes a lil anemic and we get checked next month and if the cell size and number doesnt improve by august its another bone marrow biopsy for her because her bone marrow could be under stress.
Then after that appointment i had called early in the day to meet with the surgeon who did the gtube cause Audriannas granulation tissue was getting bigger so she got some silver nitrate applied to it didnt even cry she was amazing we go back the 11th.
Anyways now the nurse is here i am exhausted have been everyday so I am gonna take a nap while the nurse and auds are walking they were gonna go to the park too.
This is about my life with my 5 yr old daughter who has mild to moderate spastic quadriplegic cerebral palsy, Schizencephaly ,Partial Seizures, Allergies, Asthma. And the challenges we are faced with on a daily basis along with the new challenges that we will be faced with as our family expands to include another baby girl.
1 comment:
Of course sweet little Aud was a good girl at the doctors! She's such a sweetheart! :)
Sammy has two appts. next week, Tues. and Wed. Ugh! I have to take both days off of school...my principal wasn't crazy about it, i think...oh well...like I asked for a disabled child that needs to see specialists ALL THE TIME!! :(
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