This is about my life with my 5 yr old daughter who has mild to moderate spastic quadriplegic cerebral palsy, Schizencephaly ,Partial Seizures, Allergies, Asthma. And the challenges we are faced with on a daily basis along with the new challenges that we will be faced with as our family expands to include another baby girl.
Monday, January 26, 2009
Ughhhh
So Audrianna had another seizure today at school this one being 10 seconds long. yea people might see this as not a big deal but it is a big deal. The nurse called me and told me about it then she called Audriannas neurologist. Audriannas father was the one who got audrianna off the bus today and he was also at my house answering the phone and what not while I was at an appointment. The teacher called around 2pm and wanted to make us aware that while Audrianna was at school she was really lethargic, she wasn't interacting with her peers or the teachers, Just not her normal self. Then the bus driver and the aide on Audriannas bus told her daddy that she wasnt really chatty or happy in fact she was really quite the whole way home. The nurse at the neurologist office scheduled an appointment for the 3rd. Then since I had some questions about if Audrianna was put on zonegran how she would take it cause its in pill form and can't be crushed Audrianna can't swallow pills. So a neurologist calls us back Our neurologist is not in for a week. And he says that he just wants her depokene increased to 4mls in the morning only and then he asked if audriannas neurologist has talked about alternative therapy for audriannas seizures. He talked about nerve stimulation or surgery or something like that because Audrianna is onw ay to many medications our neurologist hasnt talked about any other options so hes gonna leave a note for our neurologist that we should consider other options. Im even more nervous. Plus Audriannas gi dr rescheduled audriannas appointment to the 29th of this month when it was the 11th sooo m freaking out about that cause the whole feeding tube thing. dont really know what to do here. What am I supposed to do?
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