Normal

Things are well dare I say it but starting to become normal for this family. Audrianna saw her nutrionist yesterday who weighed Audrianna and couldn't get over the size of audriannas thighs poor girl give her a complex. They still weigh audrianna on teh baby scale without clothes on cause she can't stand on the standing scale. So the Nutrionist weighed her and said that Audrianna is gaining weight beautifully a lil to beautifully. So There was talk of decreasing audriannas overnight feeds or one of her daytime bolus feeds through her feeding tube. But due to Audrianna having surgery comming up so soon the nutrionist and I decided it would be best to wait til after Audrianna recovers since Audrianna tends to lose weight because she doesn't eat so well after surgeries. But because she is doing so well anyways we won't have to go back for 3 months. So now instead of audrianna being seen monthly she can now start being seen every 3 months.that is the 3rd dr who is so pleased with audriannas progress that we can start seeing them every few months. One dr sad they are so pleased with her that they feel she does'nt need to be seen. we are gonna be working with an occupational therapist outside of school tho cause Audrianna is Lazy when it comes to eatting actual food. Its almost like she has become dependent on the feeding tube. She fights her meals sometimes and will lift her shirt and point to her mic-key button. And there afraid that audrianna will stop eatting food completly and thats not good. So the occupational therapst would work on some mouth exercises and ways top get audrianna interested in food. we did see her before but way before audrianna was tube fed. We saw her when audrianna has silent asparation issues and then when she didnt asperate anymore we no longer needed to see her. So we will set up an appointment when we go to the nutrisionist in may. I'm very happy with all the good news. And audriannas starting to get lil rolls.