Were home

We have been home since Sunday but its been busy here trying to get things back in order. Aud seems to have gotten her fever back it was 99 something at the peds office today. Saturday we didnt get home till 3 and well We kinda lazed around I got some laundry done fed Aud dinner and She fell asleep on the couch at 6:30 i woke her up at 6:45pm so she could take her meds well she fell asleep in the process of her taking them. She also felt like she had a fever starting. Then Yesterday she was a crab all day and just lazed around on the couch. Today we had an appointment with the pediatrician and we also had to get her levels checked for her seizures meds the neurologist had upped her depokene dose to 3ml am 3 ml afternoon and 3.5ml at night well we got the results today from todays level check her levels are still low they had us wait on her meds till after her levels were checked. So they increased her again to 3.5mls 3xs a day then we go back in a week to get her levels checked again. The pediatrician also cant figure out why she had a fever of 102 at the hospital or why shes starting with a temp again since she doesnt have any sign of a virus so he said to give her 6mls of tylenol instead of 5 before she goes to bed tonite or if she gets. 5mls just isnt doing anything. Oh and as for the ph proble results well it only recorded 30 minutes of the test the box had dropped when we were still down in the endoscopy unit the nurse picked it up re connected it but never checked to make sure it was working properly so we might have to get it done again also we were never given a sheet to record when she ate and slept and so fourth like the nurse was supposed to give us. But on a positive note I have been mixing half light cream with half pediasure for a a few weeks except while we were in teh hospital and well auds now 25lbs 3oz shes finally gaining weight so we might not have to get a gtube. And the periactin she was put on to increase her appetite seems to be working she eats pretty much nonstop. anyways thats it for the update its almost auds bed time and she insiste on being diaperless and acting like a total brat plus she feels really warm so off to check her temp and bust out the tylenol