This is about my life with my 5 yr old daughter who has mild to moderate spastic quadriplegic cerebral palsy, Schizencephaly ,Partial Seizures, Allergies, Asthma. And the challenges we are faced with on a daily basis along with the new challenges that we will be faced with as our family expands to include another baby girl.
Friday, August 3, 2007
Busy as a bee
So I am awful at doing this whole blog thing always have been. Audrianna got her new and first pair of Hinged Afo's a few days ago and already we had to go get them adjusted today. She absolutly hates them. The Dr has suggested we think about doing a lower dosage of botox in her right leg as an outpatient procedure because it is very tight. Or to consider some oral meds. I think we will see how the surgery with Shriners goes first. Also apparently Audrianna did not get a bad batch of Botox after all it was the way her body reacted to it. Poor thing. Theres so much going on we have pt, ot, slp and dr's appointments every single week we have something going on every day of the week its so exhausting. I am on Audriannas schedule I dont have her on a schedule she has me on one lol. I do love her.
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