This is about my life with my 5 yr old daughter who has mild to moderate spastic quadriplegic cerebral palsy, Schizencephaly ,Partial Seizures, Allergies, Asthma. And the challenges we are faced with on a daily basis along with the new challenges that we will be faced with as our family expands to include another baby girl.
Wednesday, July 22, 2009
in the hospital again`
Sooo I took audrianna to her peds office yesterday her visiting nurwse had said to get audrianna in there to be checked cause shes been complaining of belly pain and flinches everytime someone goes near her bard button. Well I got her in they weighed her 29lbs 13oz I had called her gi dr before we went to the peds office to give them a heads up cause when we were at the gi drs last week there were thinking of admitting her to the hospital. But didnt they decided to increase her formula feeds a little. Cause they saw she hasnt really gained much weight. Anyways she has also stopped eatting completly by mouth. The Gi dr called while I was at the peds with auds and her visiting nurse and the gi dr talked to the peditrician and together they decided to hospitalize her so they can see what she will eat by mouth, do calorie counts, run some tests and try to figure out exactly why Audriannas not gaining weight. They started her tube feeds at 10 per hour for rate and there gonna try to get her to a goal of 65 per hr the heighest we can get her up to at home is 50 and hr or she will start screaming in pain or vomiting. Sounds like were gonna be here for a few days.
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1 comment:
good luck!
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